Day 214: Friday 23/11/2012
After an early start to the day, Sergio was all too eager to get up out of bed and have some fun time. His face lit up immediately when he got into his buggy and so off we went on our early morning walk. He is not a big fan of the elevators as he always pulls a worried look whenever the doors shut close. Ann Stack came to visit in the afternoon and Sergio loved her company as she held him and gave him plenty of cuddles. He was completely bunched by 7pm as he couldn’t stay awake any longer. Después comenzar el dia temprano, Sergio estaba demasiado ansioso por levantarse de la cama y...
Read MoreDay 213: Thursday 22/11/2012
Happy thanksgiving day. Sergio had to go back on IV fluids overnight as his J feeding tube somehow got clogged up by his medication. They used several different ways to try and free the blockage but to no avail. They even used the old-school trick of putting ginger-ale into the line. Thankfully he still had his PIC line working with good access so he was able to receive his medication through these ports. This morning he was brought down to the radiology floor where they replaced the old G-J feeding set with a new fancy looking Mic-key G-J button. In the afternoon both boys were brought for...
Read MoreDay 211: Tuesday 20/11/2012
Big day for Sergio today with the move out of the intensive care unit and up to the 10th floor. He has been in this unit since his arrival 211 days ago and so everyone is delighted for him to be leaving. We are going to miss the wonderful staff who have cared for Sergio for so long. In particular, Sergio is going to really miss his primary nurse, Jenn, who has been so incredible in looking after him. The transition went very smoothly and we are very fortunate to have been transferred to a large room. This means that the twins will have plenty of space to play with each other. Our cousin Katie...
Read MoreDay 207: Friday 16/11/2012
We had a full team meeting this morning to discuss Sergio's next steps. His trachea collar sprints were discussed and the medical team said they were pleased with their findings. The plan is to push ahead with hopefully decannulation in the future but there are still a few more goals to be achieved before this can happen. The other news is that they think that Sergio's nissen fundo may have become lose with the many bedside dilations. This explains why he has been vomiting a lot more recently. The problem with this news is that they can't re-operate until his stomach grows much...
Read MoreDay 204: Tuesday 13/11/2012
Today the dilation balloon rod, which has been inside Sergio esophagus for some time, will be removed by the surgical team. They will then proceed to do a scope of the entire esophagus. Afterwards the surgeon reported back that the structure of the esophagus looked great even though there appeared to be some superficial irritation to the walls of the esophagus which was caused by the rod placement. He is confident that this will heal in no time at all. Hoy el balon para hacer dilataciones que ha estado dentro del esofago de Sergio algun tiempo sera retirado por el equipo quirúrgico. A...
Read MoreDay 200: Friday 9/11/2012
After an early bath and dressing change of peg site, Sergio was all set for going for a spin in his go-kart. The sun outside was in full glory so we took full advantage and headed out to the garden and playground. Initially Sergio wasn’t too impressed with the sunlight shining upon his face, however he was quickly laughing afterwards as we adventured further around the wonderful garden. Today the plan is for Sergio to go a full 20 hours without the ventilator and also to wean his methadone medication. Thankfully Sergio is responding so well to his trach collar and didn’t require...
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